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The European Society for immunodeficiency (ESID) is a non for profit association that was created in 1994. ESID has been striving to improve the knowledge in the field of Primary Immunodeficiency (PID) by encouraging research, developing educational programs and fostering cooperation among all those involved in the diagnosis, treatment and management of these diseases. ESID […]
…EFCNI is the first pan-European organisation and network to represent the interests of preterm and newborn infants and their families. It gathers together parents, healthcare experts from different disciplines and scientists with the common goal of improving long-term health of preterm and newborn children by ensuring the best possible prevention, treatment, care and support. Giving […]
…IPOPI, the International Patient Organisation for Primary Immunodeficiencies, is the Association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency (PID) patients worldwide Established in 1992, IPOPI works as the global advocate for the PID patient community in cooperation with its National Member Organisations (NMOs) and […]
…Ayuda GC es una pequeña asociación que se autofinancia con cuotas y pequeñas donaciones.Como grupo de ayuda mutua (GAM) en granulomatosis. crónica, formamos parte de entidades de mayor tamaño: de AEDIPE (Asociación Española de Déficits Inmunitarios) y de FEDER (Federación Española de Enfermedades Raras). Ayuda GC se constituyó en Abril de 2000 en Barcelona (España) […]
…Centro médico que ofrece tratamientos para casos de Plagiocefalia, Braquicefalia, Escafocefalia, y otros problemas por malformaciones craneales.
…El BT-CIEN surgió en 2010 como consecuencia de la incorporación al biobanco de la Unidad de Investigación del Proyecto Alzheimer (UIPA) de la actividad desarrollada desde 1996 por el Banco de Tejidos para Investigación Neurológica de Madrid (BTIN), primero en la Facultad de Medicina de la Universidad Complutense de Madrid, y más tarde en el […]
…Dystonia Europe is a non-profit organisation registered in Belgium and serving the needs of everybody with an interest in dystonia.
…Comunidad que ayuda a poner en contacto a personas relacionadas con enfermedades poco comunes.
…The primary purposes of the LSA are: Fostering communication among families who have a member with Lowe syndrome Promoting a better understanding of the syndrome and the potentials of individuals with this condition Providing medical and educational information Encouraging and supporting research relating to Lowe syndrome
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