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05/10/2018
Centros y Servicios

Mission Statement Educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, education, advocacy, and research funding for better treatments and eventual cures. Core Values Compassion – We are a caring organization recognizing the unique challenges faced by our community and will provide support with kindness and empathy. Hope – While […]

05/10/2018
Centros y Servicios

Here you will find information about iron disorders: Hemochromatosis Juvenile Hemochromatosis Dysmetabolic Iron Overload Syndrome African Siderosis Iron Avidity Anemia of Inflammatory Response Iron Deficiency, with or without Anemia

05/10/2018
Centros y Servicios

The Scleroderma Research Foundation (SRF) was established in 1987 by patient turned activist Sharon Monsky, when research on this potentially life threatening illness was nearly nonexistent. Since our founding, we’ve stood firm in our belief that the best way to help scleroderma patients is to fund medical research aimed at improved therapies and a cure. […]

05/10/2018
Centros y Servicios

Recoge datos de personas con Enfermedad de Gaucher, Enfermedad de Pompe y Enfermedad de Fabry, para poder realizar estudios que permitan una mejor atencion a estos colectivos.

05/10/2018
Centros y Servicios

The American Academy of Allergy, Asthma & Immunology (AAAAI) is a professional organization with more than 6,800 members in the United States, Canada and 72 other countries. This membership includes allergist / immunologists, other medical specialists, allied health and related healthcare professionals—all with a special interest in the research and treatment of allergic and immunologic […]

05/10/2018
Centros y Servicios

The International Union of Immunological Societies (IUIS) is an umbrella organization for many of the regional and national societies of immunology throughout the world. As articulated in its Constitution, the objectives of IUIS are: to organize international co-operation in immunology and to promote communication between the various branches of immunology and allied subjects to encourage […]

05/10/2018
Centros y Servicios

The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) supports a wide range of medical research through grants to universities and other medical research institutions across the country. The Institute also supports government scientists who conduct basic, translational and clinical research across a broad spectrum of research topics and serious, chronic diseases and […]

05/10/2018
Centros y Servicios

The Vanderbilt LEND is federally funded by Leadership Education in Neurodevelopmental and Related Disabilities (LEND) Grant No. T73MC00050, Maternal and Child Health Bureau, U.S. Department of Health and Human Services. A five-year grant was awarded in July 1999, renewed in 2004, and renewed again in June 2011 (through 2016). The purpose of the Vanderbilt LEND […]