08/02/2006
Formación
El Instituto Internacional de Derechos de los Ninos de Suiza organiza del 10 al 14 de Octubre 2006 este Seminario Internacional relativo a los Niños Discapacitados y sus Derechos.
…Discapacidad
El Instituto Internacional de Derechos de los Ninos de Suiza organiza del 10 al 14 de Octubre 2006 este Seminario Internacional relativo a los Niños Discapacitados y sus Derechos.
…Nowadays 7,000 rare diseases (RDs) have been identified with a prevalence less than 5/10,000. Despite of the enormous effort the European Union (EU) has already invested in this field, still 4,000 RDs remain orphan of genetic diagnosis and causative gene identification. The genetic definition of RDs represents a prerequisite for being diagnosed, for having a […]
…National Plans for Rare Diseases (RDs) are the common denominator of current public health policy concerns on RDs across the EU. With the aim of a better distribution of the available resources, they conjugate the European objective that aims at ensuring that patients with RDs have access to high-quality care – including diagnostics, treatment and […]
…Rare diseases (RDs) affect less than 5 per 10,000 individuals in Europe, while in the USA a rare condition is considered to have a prevalence of fewer than 200,000 affected Americans. RDs stem as one of the most urgent and emerging health problems worldwide, creating a substantial personal, community and financial burden globally. However, available […]
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