Discapacidad
Este congreso organizado por la Sociedad Argentina de Pediatría y la Asociación Latinoamericana de Pediatría se celebrará del 13 al 16 de Junio en Buenos Aires, en el Sheraton Buenos Aires Hotel & Convention Center (Argentina). Se tratarán temas sobre el niño y adolescente con discapacidad auditiva, atención pediátrica y estimulación temprana, tendencias educativas, implantes […]
…Objectives: To obtain comprehensive, reliable data on the direct cost of pediatric abusive head trauma in New Zealand, and to use this data to evaluate the possible cost-benefit of a national primary prevention program. Methods: A 5 year cohort of infants with abusive head trauma admitted to hospital in Auckland, New Zealand was reviewed. We […]
…OBJECTIVES. The objectives of this study were to compare the birth weight and gestational age distributions and prevalence rates of autism with those of other developmental disabilities and to estimate the birth weight – and gestational age-specific risks for autism. METHODS. For the first objective, a retrospective cohort of children born in Atlanta, Georgia, in […]
…Clinical trials require great effort, time, expertise, and money. For clinicians at university hospitals with their full work load of teaching and medical care, the planning of an investigator-initiated clinical trial seems almost unthinkable. Despite their expertise in distinct diseases, university clinicians lack the time necessary to organize the funding and to initiate and conduct […]
…In this article we discuss the steps taken by the United States (US) and the European Union (EU) to meet the health care needs of children with rare diseases and suggest possible directions for future endeavors for further improvement. We reviewed 23 reports and nine legislative documents related to pediatric rare diseases and public policy. […]
…Aims:To evaluate the Australian Paediatric Surveillance Unit (APSU). Methods:We used criteria recommended by the Centres for Disease Control and Prevention (CDC) for evaluating surveillance systems and reviewed productivity, response rates, completeness of the mailing list and impacts of APSU studies. Anonymous evaluation questionnaires were sent to 1260 reporting clinicians, 42 researchers and 86 public health […]
…The British Paediatric Surveillance Unit (BPSU), a joint undertaking between the Royal College of Paediatrics and Child Health, Institute of Child Health and Health Protection Agency, undertakes nationwide surveillance of rare paediatric disorders. In 2007-09, formal evaluation to examine its effectiveness commenced.Centres of Disease Control guidelines for appraising public health surveillance systems were applied. Data […]
…All rare diseases present a common set of challenges to the sufferers and their families: diagnosis, dealing with symptoms, health information, obtaining helpful medical care, availability of medications, disability and emotional impact. Children with rare disorders are an important population from health care services, and social services perspectives, and families are providing long-term care for […]
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