Discapacidad
Se describe la Clasificación Internacional de Cuidados de Salud Mental (International Classification on Mental Health Care), elaborada por un grupo de la Universidad de Groningen, con el apoyo de la OMS, que tiene como objetivo servir de instrumento para describir y clasificar los cuidados en salud mental; siendo de gran utilidad para cualquier estudio que […]
…Se describe la Ficha Mannheim de contacto con los servicios comunitarios de salud mental (Mannheim Service Recording Sheet), de origen alemán y que tiene como objetivo el recoger el paso de los enfermos mentales por la red de servicios comunitarios de salud mental de un área determinada. Con él se registra cada contacto que realiza […]
…Small area variations in healthcare infrastructure may result in differences in early detection and outcomes for patients with rare diseases.It is our aim to provide a framework for evaluating small area variations in healthcare infrastructure on the diagnostics and health outcomes of rare diseases. We focus on administrative data as it allows (a) for relatively […]
…The category of ‘rare diseases’ has been in growing use in the fields of public health and patient advocacy for the past 15 years in Europe. In this socio-historical inquiry, I argue that this category, which appeared initially as a by-product of the orphan drug issue in the United States of America, is a boundary […]
…Our objective was to analyse the coverage of hospital discharge data and the mortality registry (MR) of La Rioja to ascertain motor neuron disease (MND) cases to be included in the Spanish National Rare Diseases Registry. MND cases that occurred in La Rioja during the period 1996-2011 were selected from hospital discharge data and the […]
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