Marfan Europe Network


The Marfan Europe Network is a coalition of support organisations concerned with people affected by Marfan syndrome or related disorders. It was originally named European Marfan Support Network (EMSN) and was founded in 1991.

Marfan organisations within Europe form a network to support and encourage each other by exchanging and sharing information and working for the benefit of people with Marfan syndrome (or related disorders) and their families.

The meetings include lectures, discussions and exchange of experience. A youth group gives young people the possibilities to exchange their personal experiences.

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Plöner Straße 19 a
23701 Eutin


+49 4521 8305034


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EuroGentest2 is a Coordination Action funded by the 7th Framework of the European Commission. The project is organised in 3 Units looking at all aspects

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