Mission Statement

Educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, education, advocacy, and research funding for better treatments and eventual cures.

Core Values

Compassion – We are a caring organization recognizing the unique challenges faced by our community and will provide support with kindness and empathy.

Hope – While celebrating today’s strengths and successes, we strive to convey to all individuals affected by ichthyosis that the future will be filled with friendship, support and a cure for ichthyosis.

Integrity – We will conduct ourselves in a trustworthy, ethical, and reliable manner in everything we do and say.

Responsiveness – We provide accurate and timely information about ichthyosis to meet the medical, social and educational needs of our community.