Key outcomes from stakeholder workshops at a symposium to inform the development of an Australian national plan for rare diseases 16/11/2018 Artículos
International conferences on rare diseases: initiatives in commitment, patient care and connections 16/11/2018 Artículos
Involvement of patient organisations in research and development of orphan drugs for rare diseases in europe 16/11/2018 Artículos
How to improve specific databases for clinical data in rare diseases? The example of hereditary haemorrhagic telangiectasia 16/11/2018 Artículos
