Stress and well-being among parents of children with rare diseases: a prospective intervention study 16/11/2018 Artículos
Surveillance of rare diseases: a public health evaluation of the British Paediatric Surveillance Unit 16/11/2018 Artículos
Returning incidental findings from genetic research to children: views of parents of children affected by rare diseases 16/11/2018 Artículos
Shared communication processes within healthcare teams for rare diseases and their influence on healthcare professionals’ innovative behavior and patient satisfaction 16/11/2018 Artículos
Simultaneous occurrence of two rare diseases: actinomycosis and melanoma of the rectum 16/11/2018 Artículos
Reported numbers of patients with rare diseases based on ten-year longitudinal national disability registries in Taiwan 16/11/2018 Artículos
Representation of rare diseases in health information systems: the Orphanet approach to serve a wide range of end users 16/11/2018 Artículos
