The Rare Diseases Clinical Research Network Contact Registry update: features and functionality 16/11/2018 Artículos
The Rare Diseases Clinical Research Network’s organization and approach to observational research and health outcomes research 16/11/2018 Artículos
The NIH Office of Rare Diseases Research patient registry Standard: a report from the University of New Mexico’s Oculopharyngeal Muscular Dystrophy Patient Registry 16/11/2018 Artículos
The Orphan Drug Act and the development of stem cell-based products for rare diseases 16/11/2018 Artículos
The many faces of rare diseases (RD): meeting report on Rare Disease in South-Eastern Europe, 15-16 November 2013, Skopje, Republic of Macedonia 16/11/2018 Artículos
