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Mucopolysaccharidoses (MPS) and Batten disease are rare life-limiting conditions (LLCs) characterised by progressive and permanent physical and cognitive decline. The impact of such conditions on families, and notably on siblings, has not yet been described or documented. This paper presents data from a UK-wide study that sought to understand the family experience of supporting a […]
…Social robotics is an emerging field, with many applications envisioned for people with disabilities. This project examined the so far invisible views of disability service organization workers towards social robotics. Because community service workers’ views shape community-based rehabilitation (an area of health interventions that focuses on social determinants), it is important to examine their views […]
…Background: Adolescents with asthma are at risk for psychological and behavioral problems. The aim of this study was to determine whether high school students with asthma are at increased risk for bullying in school and cyberspace, and to explore the role of depressive symptoms in moderating this association. Methods: A secondary data analysis was completed […]
…The current cross-sectional study examined child and adolescent pain severity in relation to various domains of school functioning and, in line with self-determination theory, the potentially protective role of perceived teacher support of child/adolescent autonomy and competence. Data from a large representative sample of Flemish school children and adolescents (N = 10650; 50.8% boys; age […]
…This article introduces novel sensitivity-analysis procedures for investigating and reducing the bias that mischievous responders (i.e., youths who provide extreme, and potentially untruthful, responses to multiple questions) often introduce in adolescent disparity estimates based on data from self-administered questionnaires (SAQs). Mischievous responders affect a wide range of disparity estimates, including those between adoptees and nonadoptees, […]
…Aims: The aim of the current study was to gain an understanding of the experiences and aspirations of young people living with Developmental Coordination Disorder (DCD) in their own words. Methods: Eleven young people aged 11-16 years with a prior diagnosis of DCD were identified from child health records of two participating NHS trusts. The […]
…In this paper we present oral narratives focusing on schooling experiences of Canadians who lived with polio as children between 1940 and 1959. We argue that disabled students with polio received an education about the differences ascribed to them by individuals in authority (teachers, principals), by other young people, and through the dominant negative discourses […]
…The tradition of research into school bullying, and the development of anti-bullying intervention programmes in Norway, has had a significant influence upon similar efforts being made in other countries. However, recent evaluations of the effectiveness of school-based anti-bullying interventions have revealed mixed and most often modest levels of success. This in turn has led to […]
…We describe the results of a systematic review of the literature on children’s mental health using a public health model consisting of three levels of mental health service: universal, targeted, and intensive. At the universal level, strong evidence exists for the effectiveness of occupation- and activity-based interventions in many areas, including programs that focus on […]
…The notion of recovery has been embraced by key stakeholders across Canada and elsewhere. This has led to a proliferation of definitions, models, and research on recovery, making it vitally important to examine the data to disentangle the evidence from the rhetoric. In this paper, first we ask, what do people living with severe mental […]
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