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MBO is an organization of more than 1500 leading researchers that promotes excellence in the life sciences. The major goals of the organization are to support talented researchers at all stages of their careers, stimulate the exchange of scientific information, and help build a European research environment where scientists can achieve their best work.
…ESCMID is registered in Switzerland with offices in Basel. Since its founding in Germany in 1983, ESCMID has evolved to become Europe’s leading societyin clinical microbiology and infectious diseases with members from all European countries and all continents.
…JDRF is the leading global organization funding type 1 diabetes (T1D) research. JDRF’s goal is to progressively remove the impact of T1D from people’s lives until we achieve a world without T1D. JDRF collaborates with a wide spectrum of partners and is the only organization with the scientific resources, regulatory influence, and a working plan […]
…The Alpha One International Registry (AIR) is a multinational research organization, representing a combined research effort of nearly 20 countries. It was formed in response to a recommendation of the World Health Organization at a meeting on alpha1-antitrypsin (AAT) deficiency in March 1996. Representatives from the member countries meet at least twice per year during […]
…The International Rare Diseases Research Consortium (IRDiRC) teams up researchers and organizations investing in rare diseases research in order to achieve two main objectives by the year 2020, namely to deliver 200 new therapies for rare diseases and means to diagnose most rare diseases.
…The Porphyrias Consortium aims to expand knowledge about the porphyrias and thereby benefit patients and their families. The Porphyrias Consortium enables a large scale collaborative effort to develop new strategies and methods for diagnosis, treatment, and prevention of illness and disability resulting from these rare disorders.
…The EPNET mission is to improve lives of porphyria patients by improving the diagnosis and treatment of these rare conditions. EPNET has been funded by the EU DG for health & consumers since 2007. We have established an effective network of specialist porphyria centres throughout the EU. Currently, EPNET consists of 33 EU specialist centres […]
…ENERCA is an acronym for European Network for Rare and Congenital Anaemias. It started back in 2002, funded by the European Commission, with the purpose of offering an improved public health service to professional medical practitioners and patients in every aspect of rare anaemias.
…Euro-Histio-Net ha sido constituido para aunar esfuerzos en el aumento del conocimiento de la enfermedad, la mejora en la cantidad y calidad del intercambio de conocimientos, la elaboración de recomendaciones y la creación de una base de datos internacional. Cualquier nueva información adquirida será distribuida por este portal web para los profesionales de la HCL, […]
…Mission Statement Educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, education, advocacy, and research funding for better treatments and eventual cures. Core Values Compassion – We are a caring organization recognizing the unique challenges faced by our community and will provide support with kindness and empathy. Hope – While […]
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