Discapacidad
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Here you will find information about iron disorders: Hemochromatosis Juvenile Hemochromatosis Dysmetabolic Iron Overload Syndrome African Siderosis Iron Avidity Anemia of Inflammatory Response Iron Deficiency, with or without Anemia
…EFAPH’s targets 1.To Inform patients, the general public and medical doctors in Europe about this disease and to guide individual and family screening through reliable testing. 2. To increase awareness. To educate the general public and health professionals about the dangers of the disease. To promote and share the best practices so that patients can […]
…The Scleroderma Research Foundation (SRF) was established in 1987 by patient turned activist Sharon Monsky, when research on this potentially life threatening illness was nearly nonexistent. Since our founding, we’ve stood firm in our belief that the best way to help scleroderma patients is to fund medical research aimed at improved therapies and a cure. […]
…L’ACADIP es l’Associació Catalana de Dèficits Immunitaris Primaris. Es va fundar el 28 de juny de 2008 i està registrada al Registre d’Associacions del Departament de Justícia de la Generalitat de Catalunya, amb el número d’ inscripció 37.778. L’àmbit d’actuació de l’ACADIP és principalment tot el territori de Catalunya. Actualment la nostra associació col·labora molt […]
…The International Union of Immunological Societies (IUIS) is an umbrella organization for many of the regional and national societies of immunology throughout the world. As articulated in its Constitution, the objectives of IUIS are: to organize international co-operation in immunology and to promote communication between the various branches of immunology and allied subjects to encourage […]
…The European Federation of Immunological Societies (EFIS) is a non-profit umbrella organization that represents 31 immunological societies from all across Europe, and even beyond the borders to Israel. Every active member of any of our member societies is automatically considered an EFIS member and can as such benefit from our programs. Thus we represent more […]
…The European Society for immunodeficiency (ESID) is a non for profit association that was created in 1994. ESID has been striving to improve the knowledge in the field of Primary Immunodeficiency (PID) by encouraging research, developing educational programs and fostering cooperation among all those involved in the diagnosis, treatment and management of these diseases. ESID […]
…IPOPI, the International Patient Organisation for Primary Immunodeficiencies, is the Association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency (PID) patients worldwide Established in 1992, IPOPI works as the global advocate for the PID patient community in cooperation with its National Member Organisations (NMOs) and […]
…Ayuda GC es una pequeña asociación que se autofinancia con cuotas y pequeñas donaciones.Como grupo de ayuda mutua (GAM) en granulomatosis. crónica, formamos parte de entidades de mayor tamaño: de AEDIPE (Asociación Española de Déficits Inmunitarios) y de FEDER (Federación Española de Enfermedades Raras). Ayuda GC se constituyó en Abril de 2000 en Barcelona (España) […]
…La Asociación Nacional de Enfermos de Sarcoidosis nace del encuentro en Internet de 5 afectados que, ante el desconocimiento general existentesobre la enfermedad y las dudas que surgen en quienes se enfrentan a ella por primera vez, deciden dar un paso hacia delante y constituirselegalmente en Asociación. La sarcoidosis, también conocida como enfermedad de Linfogranulomatosis […]
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