Possible framework and best practices in the future for prescriptions outside market authorization indications for rare diseases? 16/11/2018 Artículos
Rare diseases and their patient organization: the Hungarian Federation of People with Rare and Congenital Diseases 16/11/2018 Artículos
Orphanet and its consortium: where to find expert-validated information on rare diseases 16/11/2018 Artículos
Orphanet and the Dutch Steering Committee Orphan Drugs. A European and Dutch databank of information on rare diseases 16/11/2018 Artículos
On-line resources in dealing with rare diseases [Recursos on-line en el manejo de enfermedades raras] 16/11/2018 Artículos
